As I kicked off the first episode of 2025 on Survivor Science (#74), I found myself diving deep into a topic that's been transforming my own recovery journey: taking responsibility. Not the heavy, guilt-laden kind of responsibility, but the empowering kind that puts us in the driver's seat of our recovery.
Taking the Wheel of Your Recovery
Let me be honest with you – this wasn't an easy lesson to learn. After my stroke, I initially found myself waiting for directions, expecting my medical team to have all the answers. But here's what I've discovered: while our medical professionals are essential guides, true recovery begins when we take active ownership of our journey.
What does this look like in practice? Here's what I've learned:
- Being the CEO of your recovery means making informed decisions, not just following orders
- Keeping detailed records helps you spot patterns your doctors might miss
- Asking questions isn't just okay – it's essential
- Understanding your condition empowers better decision-making
- Your gut feelings about your recovery matter – pay attention to them
Learning from My B12 Wake-Up Call
Here's a recent example from my own journey that really drove this home. A few months ago, I noticed my energy levels dropping and my cognitive function wasn't quite right. After some investigation, I realized I'd gotten careless with my B12 supplements. This small oversight had a surprising impact on my recovery progress.
This experience taught me something crucial: responsibility in recovery isn't about perfection – it's about awareness and adjustment.
The Recovery Dance: Finding Your Rhythm
Through conversations with fellow survivors and my own experience, I've come to view recovery as a dance. Some days we nail the routine; other days, we stumble. Both experiences have value when we take responsibility for learning from them.
Here's what works for me:
- Starting each day with a flexible plan
- Really listening to my body's signals
- Adjusting activities based on energy levels
- Celebrating small victories (they add up!)
- Learning from setbacks without letting them define me
Building Your Recovery Team
While taking responsibility means being in charge, it doesn't mean going it alone. In fact, one of our responsibilities is building and managing our recovery team effectively. Through Survivor Science, I've connected with an amazing community of survivors, each with unique insights and experiences to share.
Your recovery team might include:
- Healthcare providers (doctors, therapists, specialists)
- Family and friends
- Fellow survivors
- Support group members
- Online communities
- Rehabilitation specialists
Setting Realistic Goals for 2025
As we begin this new year, I want to share something important I've learned about goal-setting in recovery: it's about progress, not perfection. When we take responsibility for our recovery, we need to be both ambitious and realistic.
Consider these approaches:
- Break down larger goals into monthly and weekly targets
- Track your progress with a recovery journal
- Share your goals with your support system
- Build in regular review and adjustment periods
- Celebrate progress, no matter how small
Resources for Your Journey
As a fellow survivor and content creator, I want to share resources that have made a difference in my journey:
Learning from Fellow Survivors:
Spotlight: Bill Gasiamis and Recovery After Stroke
I want to give a special mention to Bill Gasiamis, a fellow stroke survivor who has become an inspiration in our community. His work through the Recovery After Stroke podcast and website has been invaluable for many survivors, including myself. Bill's book "Recovery After Stroke: 7 Principles For Recovery" is a must-read that I highly recommend. It offers practical insights and strategies that align perfectly with taking responsibility for your recovery journey.
What I particularly appreciate about Bill's approach is how he combines personal experience with actionable advice. You can find his work at recoveryafterstroke.com – I encourage you to check out his podcast episodes and resources.
Additional Survivor Resources:
- Recovery After Stroke Podcast: Bill Gasiamis's fantastic show and community
- Stroke Forward Podcast: Stories of hope and practical advice
- Stroke Recovery Foundation Blog: Research-based recovery tips
- Learn more about Bill https://recoveryafterstroke.com/
Educational Resources:
- Neuro Recovery Network: Evidence-based exercise programs
- American Stroke Association's Support Network: Connect with others
- StrokeEngine: Rehabilitation exercises and techniques
Recovery Tools:
- Constant Therapy: Cognitive rehabilitation app
- Cozi Calendar: Managing medical appointments
- Medisafe: Medication reminder app
Movement & Exercise:
- Neuro-Ex: Specialized exercises for neurological recovery
- YogaForStroke: Adaptive yoga practices
- Tai Chi for Rehabilitation: Gentle movement practices
Looking Forward Together
As we continue through 2025, I'm committed to bringing you more insights, strategies, and support for your recovery journey. Remember, while each stroke recovery is unique, we can learn from and support each other along the way.
In upcoming episodes, we'll explore:
- Advanced recovery tracking techniques
- Nutrition strategies for brain health
- Exercise adaptations for different recovery stages
- Mental health support strategies
Podcast Episode #74
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Key Takeaways for Your Recovery Journey
As we wrap up this discussion on taking responsibility in recovery, I want to share some actionable takeaways that you can start implementing today:
Daily Practices for Recovery Success:
- Start each morning with a 5-minute body scan to assess your energy levels
- Keep a simple recovery journal - even quick notes help track progress
- Set one small, achievable goal each day
- Take 10 minutes to plan tomorrow's activities based on today's energy levels
- Schedule regular check-ins with your support team
Monthly Recovery Check-In Questions:
- What's working well in my recovery routine?
- What small adjustments could improve my progress?
- Am I staying consistent with my supplements and medications?
- How effectively am I communicating with my medical team?
- What new strategies or resources could I explore?
Remember These Recovery Truths:
- Progress isn't always linear - and that's okay
- Small consistent actions lead to significant improvements
- Your experience and insights matter in your recovery
- Building a support network is crucial for long-term success
- Taking responsibility empowers rather than burdens
Personal Note on Community
One thing that continually amazes me about the stroke survivor community is our resilience and willingness to support each other. Whether it's through sharing our stories on podcasts like Bill's and mine, participating in support groups, or simply reaching out to fellow survivors online, each interaction strengthens our collective journey.
As we navigate 2025 together, I invite you to not just consume content but to actively engage with our community. Share your experiences, ask questions, and offer support to others. Your story could be exactly what another survivor needs to hear today.
Remember: Your recovery journey is uniquely yours, but you're not alone in it. Let's make 2025 a year of purposeful and powerful progress together!